Prof. Bartha Maria Knoppers
Fellow
Current Employer
McGill University
Election Year
2015
Academy
Académie des sciences sociales
Discipline
Law
Keywords
ethical, legal, social issues/principles, biomedical research, human genetics, genomic sciences, biobanking, health law and science policy
Updated July 9, 2015
KNOPPERS, Bartha Maria, Director of the Centre of Genomics and Policy; Professor, Faculty of Medicine, Department of Human Genetics, McGill University; Canada Research Chair in Law and Medicine
Prof. Knoppers' has made exceptional contributions to policy development regarding the ethical, legal, and social issues concerning biomedical research and human genetics. Her academic and legal career has contributed to international policy harmonization and interoperability, building both the ethico-legal frameworks and the accompanying procedural tools to foster good science for citizens. Her work on consent, confidentiality, discrimination, biobanks, and data sharing is central to laws and regulations worldwide.
KNOPPERS, Bartha Maria, Director of the Centre of Genomics and Policy; Professor, Faculty of Medicine, Department of Human Genetics, McGill University; Canada Research Chair in Law and Medicine
Prof. Knoppers' has made exceptional contributions to policy development regarding the ethical, legal, and social issues concerning biomedical research and human genetics. Her academic and legal career has contributed to international policy harmonization and interoperability, building both the ethico-legal frameworks and the accompanying procedural tools to foster good science for citizens. Her work on consent, confidentiality, discrimination, biobanks, and data sharing is central to laws and regulations worldwide.
Updated July 9, 2015
Prof.Knoppers a contribué aux politiques sur les questions éthiques, juridiques et sociales de la recherche biomédicale en génétique humaine. Elle a contribué à l’harmonisation et l'interopérabilité des politiques internationales en construisant des cadres éthico - juridiques et les outils nécessaires pour promouvoir la science pour les citoyens. Son travail sur les questions de consentement, confidentialité, discrimination, les biobanques, et le partage des données est central aux lois et réglementations à travers le monde.
Prof.Knoppers a contribué aux politiques sur les questions éthiques, juridiques et sociales de la recherche biomédicale en génétique humaine. Elle a contribué à l’harmonisation et l'interopérabilité des politiques internationales en construisant des cadres éthico - juridiques et les outils nécessaires pour promouvoir la science pour les citoyens. Son travail sur les questions de consentement, confidentialité, discrimination, les biobanques, et le partage des données est central aux lois et réglementations à travers le monde.